Overall Aim: PCPCC's Pediatric Asthma Person and Family Engagement (PPFE) Learning Network examined how to use person and family engagement strategies to improve pediatric asthma care and reduce emergency visits for asthma. The PCPCC SAN hosted 5 learning network calls lead by a pediatric quality improvement expert, showcasing pediatric practices that have improved asthma care quality. Participants were provided with specific ideas for using person and family engagement strategies to improve patient activation and overall asthma care quality. The Learning Network offered targeted strategies, tools, and resources aligned with clinical objectives and metrics from the Transforming Clinical Practice Initiative.
Target Audience: Clinicians and quality improvement staff from pediatric practices, Practice Coaches/Facilitators with PTNS
Format: Each Learning Network webinar included:
Objectives:
Objectives:
To identify and discuss standardized assessment tools for practice teams to consider testing as part of initial and/or follow-up asthma visits.
To discuss “Teach Back,” as a strategy for practice teams to consider testing to engage patients/families in medication techniques and use.
To share resources and strategies to help support pediatric practice teams engage patients/caregivers in their own/child’s asthma management.
Objectives:
Objectives:
Objectives:
• To briefly review the 6 TCPI PFE measures and discuss how they operate synergistically to activate patients and families as partners in asthma care
• To discuss strategies for practice teams to test to engage and partner with identified community-based organizations and agencies who could help patients/families with asthma.
• To share best practices and lessons learned regarding coordinating care with family supports and services and patients/families with asthma.'
These opportunities to improve PFE in the pediatric primary care setting involve the use of QI methodology, to test changes and implement/sustain and spread improvements, AND include actual “voices” of patients/families early and often, as team members at various levels of partnership to improve their own/child’s care and practice-based care systems.
Lesson One Session Recording
Lesson 2: Webinar Recording
Health Literacy
North Carolina Program on Health Literacy Health Literacy Universal Precautions Toolkit
Agency for Healthcare Research and Quality Health Literacy Universal Precautions Toolkit
Teach-back
The Teach-Back Method - Tool #5 from the NC Health Literacy Universal Precautions Toolkit
The Guide to Improving Patient Safety in Primary Care Settings by Engaging Patients and Families Implementation Quick Guide - Teach-Back
Activation of Patients for Successful Self-Management - 2009 article with discussion and assessment tool
Assessment of Activation
My Health Confidence Ruler - AAFP
Patient Activation Measure is copyrighted by Insignia Health
What The Evidence Shows About Patient Activation: Better Health Outcomes And Care Experiences; Fewer Data On Costs - 2014 article
Quality Improvement
Institute for Healthcare Improvement - PDSA tutorial
Lesson 3 Slides: Engaging the patient/family in asthma care visits (Part 2)
SHARE approach for shared decision-making (AHRQ) - https://www.ahrq.gov/professionals/education/curriculum-tools/shareddecisionmaking/index.html
Asthma Treatment Plans - PediatricAdult Asthma Coalition of NJ (PACNJ) - http://pacnj.org/pacnj-asthma-treatment-plan/
Minnesota Department of Health interactive Asthma Action Plan (iAAP)
National Patient Safety Foundation - Words to Watch Fact Sheet (Health Literacy)
Article: Butz, A. M., Walker, J. M., Pulsifer,M. and Winkelstein, M. Shared Decision Making In School Age Children with Asthma. Pediatr Nurs. 2007 ; 33(2): 111–116.
Lesson 4 Slides: Engaging Patients and Families in Asthma Visits - e-Tools
Pediatric Patient Engagement as a Criteria for Meaningful Use Stage 3 - AHRQ funded study of use of patient portals to drive QI for pediatric asthma care
Parent-Reported Outcomes of a Shared Decision-Making Portal in Asthma: A Practice-Based RCT , and supplemental information - Fiks et al. article from Pediatrics, 2015
How Families and Caregivers can Use Open Notes - information for patients and families from the OpenNotes Web Portal
Session 5 Recording: Adopting PFE Strategies to Improve Pediatric Asthma Care
Lesson 5 Slideset: Connecting patients/families with appropriate supports and services
Recommended Resources
American Academy of Pediatrics (AAP): Connecting Families to Community Resources - Basic Needs Referral Template
AAP National Center for Medical Home Implementation: Care Co-Management Among Patient/Family, Pediatric Medical Home and Specialists
AAP Council on School Health: Making the Grade: Working with Families and Schools for Academic Success
University of Massachusetts: New Patient Referral / Consultation Form - Sample
National Institute for Children's Health Quality: Family Engagement Guide