Improving Patient/Family/Caregiver Engagement

Positioning the Family and Patient at the Center: A Guide to Family and Patient Partnership in the Medical Home (AAP, 2013)

This report features family-centered medical home strategies from pediatric primary care practices from across the country, including case studies, literature reviews, and discussions.

Creating a Patient Guide for a Medical Home Practice (CFAH, 2011)

This handbook is useful for existing medical homes to create a simple guide for patients that gives them and their families the knowledge they need to make appointments, contact their physician, who to speak with about financial matters, how to get after-hours care, and how referrals are handled.

Tips for Improving Communication with Your Patients (Pfizer, 2011)

This helpful guide aids physicians and care teams in approaching their patients and maintaining communication that is both meaningful and  impactful. 

Self-Management Support (AHRQ)

This toolkit serves as a resource for physicians and patients dealing with chronic disease management. The guide helps physicians learn to encourage their patients to manage their conditions and develop the courage to make healthy decision.

Self Management Video (AAFP)

This video serves as a guide to help physicians encourage their patients to take a more active role in managing chronic health conditions by making healthy choices and educating themselves. 

Patient Portals

How Patient Portals Create Value for Patients (MedFusion, 2010)

This white paper introduces the concept of Patient Portals and their defining characteristics, including the importance of patient engagement and communication with health professionals.

Measuring the Impact of Patient Portals - What the Literature Tells Us (CHCF, 2011)

This paper intended to inform the work of health care providers examines research documenting the implementation of patient portals and their impact on health care delivery.

Personal Health Records

Creating a Personal Health Record (AHRQ, 2010)

This video introduces the importance of a personal medical record and the information it contains in the case of an emergency.

Setting Up Patient/Family Advisory Committees

Guide to Developing a Community-based Patient Safety Advisory Council (AHRQ, 2008)

This guide provides information and guidance to empower individuals and organizations to develop a community-based advisory council involving patients, consumers, and a variety of practitioners and professionals from health care and community organizations.

Patient and Family Advisory Councils: A Checklist for Getting Started (IPFCC, 2010)

This comprehensive checklist serves as a guide for individuals and organizations who wish to start a Patient and Family Advisory Council.

Patients and Families as Advisors in Primary Care: Broadening Our Vision (IPFCC, 2009)

This document provides information on the ways in which patients with chronic conditions and families can serve as advisors to health care providers, program planners, and administrators.

Patient/Family Experience Surveys

CAHPS Clinicians and Groups Survey Tools (AHRQ, 2013)

The Clinician & Group Surveys include standardized questionnaires and optional supplemental items for adults receiving primary care or specialty care, as well as children receiving primary care.

Providing Culturally Effective Care

Cultural Competence Self Assessment Tools (NCCC)

This cultural self assessment tool that help in the development of a strategic organizational plan with clearly defined goals, measurable objectives, identified fiscal and personnel resources, and enhanced consumer and community partnerships.

National Standards for Culturally and Linguistically Appropriate Services (CLAS) in Health and Health Care (OMH, 2013)

The National CLAS Standards are intended to advance health equity, improve quality, and help eliminate health care disparities by establishing a blueprint for health and health care organizations. 

Health Literacy Video (ACP)

This video looks at issues of health literacy and patients' understanding of health information that applies to their care.



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